tag:blogger.com,1999:blog-2907796984497866431.post5257240606358631713..comments2023-04-30T09:43:42.508+01:00Comments on Come with M.E. on a journey: Managing your ME/CFS courseBeautshttp://www.blogger.com/profile/02904430375268751729noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2907796984497866431.post-45197315972936018942013-05-08T08:47:28.344+01:002013-05-08T08:47:28.344+01:00Thanks Sally. I'm going to persevere with it ...Thanks Sally. I'm going to persevere with it and I think your idea of getting everyone to share something would be good to get the group talking, but they seem so paranoid about "not putting anyone on the spot" that they've gone too far the other way!Beautshttps://www.blogger.com/profile/02904430375268751729noreply@blogger.comtag:blogger.com,1999:blog-2907796984497866431.post-74411445711089607872013-04-29T08:23:23.613+01:002013-04-29T08:23:23.613+01:00PS - I've just nicked your ME/CFS awareness da...PS - I've just nicked your ME/CFS awareness day image for my blog! ;-)Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-2907796984497866431.post-85267327410093914742013-04-29T08:20:45.930+01:002013-04-29T08:20:45.930+01:00Sorry to hear you are having a bit of a relapse af...Sorry to hear you are having a bit of a relapse after a few days more active.... <br /><br />On the plus side it is re-assuring to know that we can do a little extra sometimes. I was on holiday recently and averaged 1500 steps a day (for 4 days) instead of my usual 1000 - and after a week of rest (600 steps daily for a week) I am now back to where I was before. Yay. <br /><br />As for attending the meetings - I think you are so right to keep going. Perhaps you could ask for a break in the middle so you can all chat to each other a bit (kindred spirits etc.) <br /><br />Or perhaps you could suggest the leaders programme in a time for each person to share something they feel they have achieved? I went to a course run by Arthritis Care on Managing Chronic Illnesses and this was the best bit. Hearing about others challenges and what they were doing to face them was inspiring. This followed through each week and didn't have to be illness related. So some ladies were talking about finding time to make a call to a friend, or clean a messy cupboard, or even just to get up and dressed before a certain time in the day.<br /><br />Actually - A few of that group are meeting for lunch today... this is the 2nd gathering we've had since the course finished and I'm looking forward to meeting this group of strong people with weak bodies once again. <br /><br />Thinking of you and your family.... :-)Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.com