Friday, 30 May 2014

Rebuilding again

If you had spoken to me in the middle of last week and asked how I was doing, I would have said, and indeed did say to several people that i was doing ok, infact i was on the way back up again.  I felt I had turned a corner and was feeling much stronger than I had done for a while.  So, why is it that here I am on Monday having had another weekend of very low energy levels?  Friday wasn't good and I spent most of Saturday in bed so that I might have enough energy to go out with friends in the evening.  I did go out, but didn't  really feel I contributed very much to the evening.
Here I am again on Friday, probably had the worst week I've had for a very long time.  There is a sort of explanation, I've been taking laxatives for the last week and a half and the process seems to have zapped any energy I might have had.  I have been sooooo fatigued this week.  My everyday chores have been beyond me.  The thought of taking a shower this morning was exhausting, but I knew I really had to do it today as I'd already avoided it for a couple of days.  I feel like I've been thrown back a couple of years.  So I have decided not to take the laxatives from today and try and build myself back up again.  I felt I was doing so well at the start of last week before all this happened.
It's another day doing as little as possible in the hope I will have enough energy to go to a BBQ we have been invited to tonight.  I will get there if I can - meeting up with friends is good therapy!
Today the Invest in ME research conference is happening in London.  Researchers from 9 different countries converging to discuss the latest advances.  I look forward to purchasing the DVD of the event to see what's been going on and what is

Wednesday, 14 May 2014

The ME\CFS Regime

Wake up at 4.50am
meditate for 40 mins
Get up and make my daily cup of hot orange with minerals:
Myhills magic mineral mix 2 grams, magnesium chloride 1 gram, ascorbic acid 1/2 gram, acetyl L Carnatine 1/2 gram.
and hubby a cup of tea.
Perrin head,  neck  & chest massage
Hubby does Perrin back massage for me.
Perrin twists and shrugs.
Take POTs medication (Ivabradine)
Cook myself breakfast of spinach and feta scrambled eggs and take with it:
multi vitamin, Co Q 10, L-glutathione, VegEPA, Selenium, Niacinamide (B3), B12
Later I will have a fruit smoothie in which to hide some spirulina, do a yoga class, take evening VegEPA and medication, then meditate again before sleep.
I will  eat gluten free and healthily for lunch and dinner, snacking on nuts and seeds.  I will enjoy a  piece of cake from the local farm when I meet friends there later : )
I will try and pace myself through the day.