Sunday, 25 January 2015

Paying the price with my ME/CFS

My previous blog post was on the 2nd January and reading it back now, I was on such a high from the activity I had managed over New Year.  I was also aware at the time that I would probably have to pay the price at some point.  In fact I was on such a high and probably had so much adrenaline going through me when I came back from Copenhagen that the following morning I decided I could go and do a normal yoga class.  It was after that yoga class that my body decided it had had quite enough thank you very much and I fell or dropped (as that is how it feels) into a state of constant fatigue.  During this time, everything becomes such an effort and there are no reserves.  No reserves of energy to pull on and when you ask something of your body it just cannot respond.  It took until the 19th January before I started to feel anything like back to my "normal" and since then I have been VERY careful.  It's a delicate balance now and a case of rebuilding some sort of reserve by taking care of myself and making sure all my "recovery protocols" are in place.  January is always a busy month in our house with three birthdays in the space of two weeks and this month we have also been choosing a school for dear daughter 2 to do her A levels.  Fortunately, that decision has been made this weekend and that is one less thing for me to have to think about now.

One of the frustrations of having such little energy this month is that the lovely little exercise program that I had been doing and so enjoying, before Christmas - 2 yoga classes and one session on the exercise bike every week - has had to be put aside.  I worry about how long it will take me now to get back to being strong enough to be able to do this again.  How much has that wonderful New Year weekend away set me back?

All the more frustrating as my excellent Christmas present was a Kettler recumbent R exercise bike:

It looks like a bit of a beast and it is!  I love it and can't wait to get on it regularly.  Being recumbent keeps my heart rate down and I get almost instantaneous relief from painful quad muscles by "flushing through" my thigh muscles as I cycle.
It is electronic and I can program it in lots of different ways including by heart rate which will be useful.
 Right now I will just use no resistance and program for a certain amount of time.  It has a great ear clip heart rate monitor built in which works really well.  Young Ben is having lots of fun with it  and building his thigh muscles and stamina too!  I'm hopeful that this week I might be able to get back to it, but need to be cautious, I have to be patient as I know so well that exercise at the wrong time will just set me back further.  It is an annoying wait when you just want to get on and DO.

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