Saturday 22 August 2015

ME CFS pacing

Yesterday I went to collect DD2 from a week long summer music school which always finishes with the most fantastic of concerts.  I guess I'd watched about 85% of it before I all of a sudden felt very warm and had to remove my cardigan, then I had a pain in my sola plexus and then horrible palpitations.  I looked at Ant and I think he knew what that look meant, I had to leave.  Luckily we were sat in the front row and when the piece they were playing finished I headed out to the corridor where I sat with water wondering where I could reasonably lie down or whether or not that would make me feel any better.  I went cold and had the shakes with tremors and then gradually it all subsided.  I could hear the finale of the concert, but it's not the same as being in the audience.

It reminded me very much of a similar incidence back in June at a speech day when I was just sat watching an event and enjoying myself and almost exactly the same thing happenned.  That day I put it down to the heat in the marquee that triggered the reactions.  Ant says it was hot yesterday in the music hall, but I didn't feel it.

Anyway, afterwards yesterday my head hurt and this morning I woke up weak and with a headache which hasn't moved all day.  I was supposed to be out with Ant and Ben today, but I couldn't make it and they went for a boys day out together.  I have spent the day in my pj's on the sofa.  Yet another planned day out missed.  Probably my own fault for over scheduling myself (again).  I had had a reasonably busy week this week, but I seemed to manage pretty well as it was happening, yesterday, whilst I was sat relaxing and listening to music my body objected retrospectively.

6 years down the line you think I would be better at knowing what I can and can't get away with, but I am still unrealistically optimistic about what is possible.

2 comments:

  1. I too have had a couple of these sorts of episodes... not fun. The thing is they seem to be hard to predict. Hopefully a bit of rest in the next day or two will put you back on normal form once more. xx

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  2. H. Sally
    It's reassuring to know others also get these strange "turns". Even though I've had a lot of them now and I sort of know the form they take and that they do work themselves through, I still find them a bit scary because of that feeling of being out of control and as you mention the unpredictability.

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